NEMO (nuclear factor-kappa B essential modulator) deficiency
This information explains the rare immune condition called NEMO (nuclear factor-kappa B essential modulator) deficiency syndrome. The content has been produced jointly between PID UK, Great Ormond
Street Hospital (GOSH) and the Great North Children’s Hospital and in
association with the XLP Research Trust.
The information has been
reviewed by the PID UK Patient Representative Panel and by families
affected by NEMO. It has been endorsed by the PID UK Medical Panel.
February 2019