Affiliations and links

PID UK is the national UK representative member of the International Patient Organisation for Primary Immunodeficiencies (IPOPI) and a member of the following organisations:

Genetic Alliance UK  

Rare Disease UK

Specialised Healthcare Alliance

Prescription Charges Coalition

Northern Ireland Rare Disease Partnership (NIRDP)

Irish Platform for Patients' Organisations, Science and Industry (IPPOSI)

Membership of panels and committees

PID UK has representation on:

• National Plasma Product Expert Advisory Group Committee, National Health Services Scotland
• NHS England Clinical Reference Groups for Specialised Immunology and Allergy Services, and Paediatric Medicine
• British Society for Immunology Patient and Public Engagement Forum
• Rare Disease UK Patient Empowerment Group
• Welsh Clinical Immunology Service Specification Working Group Committee

Dr Susan Walsh, Director of PID UK, is a member of the National Institute for Health and Care Excellence (NICE) Antimicrobial Stewardship Guideline Development Group.

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