International PID support groups

The International Patient Organisation for Primary Immunodeficiencies (IPOPI) is an association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments.

A list of international primary immunodeficiency support groups can be found on the IPOPI website.

PID UK became the UK national member organisation of IPOPI in 2014.

Jeffrey Modell Foundation

www.info4pi.org

The Jeffrey Modell Foundation is dedicated to early diagnosis, meaningful treatments and, ultimately, cures through research; physician education, public awareness, advocacy, patient support and newborn screening. It supports expert immunology centres around the world.

The Chest CT in Antibody Deficiency Syndrome Group

www.chest-ct-group.eu/

The Chest CT in Antibody Deficiency Syndrome Group is an international and interdisciplinary group that works to improve pulmonary diagnostics in patients with antibody deficiency syndrome. One of the projects of the group is to uniformly document chest CT scans.

Plasma Protein Therapeutics Association

http://www.pptaglobal.org/

The Plasma Protein Therapeutics Association is the primary advocate for the world's leading source plasma collectors and producers of plasma-based and recombinant biological therapies.